It is with a heavy heart that I write this blog. The irony of the situation I’m in is not lost
on me. My last blog post was about my
little friend Musa. You can read about
his story here and here. I was boasting
about how well he was doing! Unfortunately,
Musa has taken a turn for the worse. Literally one or two days after I posted
that blog, his illness returned. Or some
kind of illness returned.
He was over at my house one evening and started complaining
of left sided pain. I didn’t take it too
seriously because people here tend to complain about aches and pains quite
frequently. However when he mentioned
his pain again the next day, along with another symptom that he wasn’t “peeing
freely,” he caught my attention. I asked
him some questions and tapped on his kidneys to see if he was in pain. When I touched him, he jumped back and gave
me a look like “why in the world would you want to do that to me?!?!!?” Yup, definitely painful. I looked at his face and noticed that his face
looked a little puffy as well.
It was obvious that Musa had a kidney infection. This is pretty uncommon in young men, but I
began the treatment and he seemed to improve.
But then he got worse again. He
said he was having trouble urinating so we inserted a catheter to drain some
urine. Pus was noted in the urine. We encouraged him to drink plenty of
fluids. These symptoms went on for about
two weeks. I discussed this case with the doctor we have here and we started a
couple other medicines to try and treat any other possible causes of an
obstruction that was causing his inability to freely urinate.
I discussed his condition with the surgeon who did his
initial surgery as well as with our doctor here. It seemed that we had done everything we
could for him and needed to take him to Freetown to obtain some more studies. Unfortunately
in the last six months or so our ultrasound machine has broken, our xray
maching is broken, and we no longer have the capacity to check necessary lab
tests. The decision to take Musa to
Freetown for further studies was unanimous.
When I told Musa, he started crying. This poor boy has been through so
much, for so many years and this was very discouraging news for him. I left him Saturday afternoon at the hospital
with a nurse who was going to reinsert his foley catheter to drain some urine.
Sunday morning I was working in the OB ward when Musa’s
mother came to get me. She said that Musa was just lying down, wasn’t talking,
and was chewing on his tongue. I figured
that he was just discouraged about the news I’d given him yesterday and told
his mother that as soon as my friend Peter (also a friend of Musa’s) and I got
back from church we would go talk with him.
She said it couldn’t wait and asked me to come see him now. So I went.
When I arrived at the house, Musa was laying on the floor in severe
respiratory distress. His face was twice as swollen as it had been the previous
afternoon. No!!
I asked if there was a motorbike that would be able to take
him to the hospital, as there was no way he could walk. They went to arrange
one and I set off at a trot to be able to meet them at the hospital. They beat me there and as soon as I walked
into the hospital the nurses started saying “Emily! Your friend Musa has
returned!” (Everyone in the hospital knows him).
When I listened to his lungs, I heard quite a bit of fluid
in his lungs. I inserted a foley
catheter (they were unsuccessful the previous afternoon) and gave him some
medicine to try to drain some of the fluid off his lungs. 40mg of Lasix….no urine output. I gave him another 20mg. Nothing.
I gave him another 20mg and
he finally started putting out some urine.
This was a hefty dose of Lasix we had to give him in order to get some
urine. It appeared that for some reason, his kidneys weren’t working. Had his cyst returned and was somehow
interrupting his kidney function? Was it truly kidney failure? We had no way of knowing. As I mentioned
above……everything is broken.
I called the doctor and he met me at the hospital. We continued the treatment, but neither of us
had a good feeling about him. We were
flying blind, and even if we weren’t, we had such limited capabilities. Frustrating.
That night I decided to sleep at the hospital. I’ve been with this kiddo for so long. I was in the OR with him during both
surgeries, visited him at least once a day every day he was in the hospital and
after he was discharged he made it a habit to come to my house every day. If he was going to die tonight, I wanted to
be with him to the end.
Praise the Lord for some good friends who kept Marie for me
that night. It was a long one. His
breathing was so labored and every time he stirred in the night I awakened to see
what was going on. His mother tried to
go home to rest but returned a short time later stating she just couldn’t stay
away from him. One of the sweetest
things of that night was watching Musa’s older brother. He didn’t sleep a wink.
Anytime I looked up he was doing something to help his brother. Adjusting the
sheet, fixing the oxygen cannula, helping him to the bathroom or applying Vaseline
to his dry lips. It was precious. At 5:30 I got up to go home to shower before a meeting I had at 8. He asked where I was going and I explained but asked if he wanted me to stay. He said, "Yes. Stay." So I stayed. Thirty minutes later he awoke suddenly and started asking, "where's Emily? Where's Emily?" "Look me! Look me!," I said.
Later that morning the doctor and I discussed our
options. He was sick. Really sick. And that was our problem. We knew that there wasn’t much we could do
for him here. But could they do anything for him in Freetown? If he truly was in kidney failure, do they
have a dialysis machine? If it was the cyst that was somehow impeding his
kidney function, could they do anything for it? He certainly wasn’t a candidate
for surgery! And the biggest question of
all. Would he even survive the journey?
Do I take this kid and his mother away from their only support system if
he’s just going to die anyway? Ugh! Decisions, decisions. We finally decided that if he was the same or
improved the next day, we would take him to Freetown. If he was worse, we would
keep him here and let him pass away near his family.
That night I decided to sleep in my house. I didn’t think I’d
be able to make the 7 hour drive on two nights of no sleep, so with strict
instructions to call me if his condition changed at all, I went to my house.
The next morning I was pleased to see that his condition looked slightly improved.
We decided to go. I already had my bags packed so I took care of a few
remaining things and we loaded him up into the car.
The journey down was brutal for him. I don’t know if I’ve
discussed the condition of the road to my village before, but it’s one of the
worst roads in the country. And it’s rainy season, which always makes the roads
worse. Although I went much slower than usual, I still had to stop several
times just to give him a break from the jostling. When he told us that he had
to have a bowel movement, I thought the strain of getting him in and out of the
car might be the end of him. He just had no reserve for his respiratory
effort.
We reached Waterloo where the rest of my NGO lives. We had
arranged that I would drop Marie off so she could get to bed. I met them at the
turnoff for the house and passed Marie off. As I went to get back into my car,
one of my co-workers told me her husband was going to come with me. I started
crying. I know they were concerned with my safety, traveling at night like I
was doing. But they also didn’t want me to have to do this by myself. I am SO blessed with the team I have here. I
can’t even express it.
I drove us the hour and a halfish to get to the hospital.
When we got there they brought a stretcher and took him straight to the ICU. I
met with the doctor and explained the whole complicated situation, beginning
from the first surgery. Families aren’t
allowed to stay with the patients in the ICU so after we said goodnight, I took
his mom and dad to their family’s house and I went home.
We came here on Tuesday. Today is Friday. The doctors and staff here have been
wonderful. They are hopeful, but
realistic. This is the best hospital in
the country, but there are still limitations. I talked with his doctor about
intubating him (putting a tube down his throat to breathe for him) but they don’t
have the lab tests available to make sure the settings are correct. We talked
about dialysis (putting him on a machine that will essentially do his kidneys
job for him) but the doctor said that the one and only dialysis machine that
was donated to Sierra Leone is at the government hospital and until now has
never been used. So we were left with
managing him as best we can with medicines. And prayer. Lots of prayer.
Yesterday Musa looked bad. When I left him at about 7pm his
breathing was worse, his heart rate was up, and he was confused. All very bad
signs. I went home and had a breakdown
with my friends. I figured he’d probably
die today or tomorrow. You just can’t
keep breathing as hard as he is without tiring out. Every day I’m sitting in 5-6 hours of traffic
to travel to and from the hospital, but I just can’t stop. I need to be with him until the end.
As I walked into the hospital today I got the same sinking
feeling I always do. Just wondering what
I’m going to find. Today however, I was
encouraged!! His heart rate was down,
his breathing was easier, and he was fully conscious. Thank you Lord!! I know he is still critically ill. I’m afraid to become hopeful, but I can’t
help it. Yesterday I was mentally
arranging how I would get his body back to the village. Today I dare to hope that he might go back to
the village alive! One of the saddest
things about yesterday was that he still has such a strong will to live! He told me to please tell the doctors that he
is seriously sick. He asked me if we were going to do an operation on him to
make him better. He told me he was tired of being sick and really wanted to go back
to the village with a “well body.” It
was heartbreaking.
So we wait. Once
again I am SO incredibly thankful for my teammates. I honestly don’t know what
I would do without them. I’ve been leaving the house at 8am every morning and
returning around 10pm. These would
obviously be very long days at the hospital for Marie, so my friend Robin has
graciously agreed to watch her for me.
What a relief to be able to leave her with people that she loves and
love her so much and not have to worry about her. It makes my load so much lighter!!
Several of you have asked me to mention any extra financial
needs I may have. This is one. Like I
said before, this is the best hospital in the country, but that means it’s
expensive. Since he’s in the ICU, it’s
costing a couple hundred dollars every day. I know it’s minute compared to
hospital costs in America, but this is hungry season so the requests to me for
help have been plentiful. To be honest, I’m
tapped. If you’re interested in helping, just let me know. Thank you, thank you, thank you!!
Please pray. I know that God is the giver and sustainer of life so I’m trusting that His hand is in this. Please pray for healing, and also that Musa would be encouraged. No matter what the outcome is, my desire is that Musa will draw near to Jesus and that He will be glorified in this situation. THANK YOU!
